Chemo no 6

It’s all over now. My last chemo, thankfully, was a couple of weeks ago. It’s probably not the final one ever but it’s the last one for a while. Maybe for months. Hopefully for years. I’m so happy to be at the end of this current course of treatment. I’ve now had 35 chemo cocktails in total, I think, most of them over the last two years. To not have to face the prospect of that evil stuff, like that above, dripping into my veins is wonderful.

I hope the break is long enough to get some hair. It’s still a shock to see my bald head. I really miss not being able to tie it back. Yes I could do that with some of my wigs but it’s not the same. Anyway I’m not really into wigs at the moment. Wearing a wig takes up precious energy. Instead most days I wear a soft hat. It’s much more comfortable and doesn’t seem out of place at this time of year.

But to celebrate chemo no 6 I wore my favourite wig to hospital. It’s the one you see me wear when I’m occasionally on television. I now have an impressive collection of them however my work wig is the one that I love wearing the most. Despite this it still has no name!

I always like to try and look smart when I go for treatment or consultations. It gives me back a tiny portion of control, knowing that I’m not too ill to wear make-up and a dress. If I look well, I feel better. I feel worse when I don’t make an effort. Cancer forces you to give up so much of your identity that you have to cling onto what you can.

Chemo 6 was totally unremarkable. I saw my consultant, The Professor. It was the best kind of appointment as there were no test results to be told about. We ran through all the side effects of the past few weeks but there was nothing alarmingly awful. Just standard awful.

For this treatment, mum and my aunt Rose came along. To keep them entertained I sent them out on missions. First to the pharmacy, now thats always it’s an adventure which tends to take ages – finding the place and then waiting in the inevitably long queue. After picking up my prescription I asked them to go in search of a jacket potato with melted cheese. They were successful on both counts.

I then slept for a few hours. Probably the most interesting thing was eating a baked potato in bed in the afternoon. It was the first time I’d had eaten something hot while having chemo. The day really was that dull.

The nurses stayed late to ensure that my treatment got finished. I ended up being the last patient to leave the ward. Parts of it were already in darkness and the cleaner had started his evenings work. As I walked out my spirits lifted. I had a dizzy, drunk, fuzzy feeling. The potent cocktail of super strength drugs and steroids was acting like the rocket fuel, giving me the boost I needed to get home.

I felt so wired and that we started our journey by bus. It took us through streets that have become so familiar to me. Past the school where I used to play netball matches for the BBC team and then along a road to the sports centre where we used to train. The outdoor court we used was next to a row of football pitches. It had a concrete canopy as it was just below a busy fly-over. With such a stark, urban setting, it always felt like the set for a trainer advert.

The bus stopped near the training ground and a sporty looking woman got on. She was dressed in the kind of kit that I used to wear for netball. As we travelled further away from the hospital I smiled to myself. I realised that this was a tantalising glimpse of what my life after chemo could be like.

Chemo#7

It’s not quite what you expect to see but there to greet us at the entrance to the chemo unit was a bird of prey. It wasn’t long after lunch and the kestrel had just killed a vole in the hospital car park.

Like the bird, I was about to do something pretty violent, in my own way, in order to survive.

Rather than feeling squeamish, I enjoyed seeing such a powerful creature. It seemed like an inspiring sight just before chemo#7. I didn’t realise why until I did a little research while waiting for my chemo cocktail to be mixed up.

Some people apparently see the kestrel as a warrior or a warlike symbol and in battle they use its image believing that it gives them prowess. The bird represent success, victory and rising above a situation.

Wow – I’ll take all of that thank you very much.

The skill of the kestrel is to hover in the air, locate its target and then choose the right moment to strike. According to a mystic on the internet, they are all about focus. When you see one it’s a sign that you should focus on your goals and do what’s necessary to make your desires become a reality.

The bird’s timing was perfect. I’m now entering probably the hardest part of my treatment. The side effects are getting worse and yet it seems like there’s no end in sight to the chemo sessions. Still 11 to go after this one. Even if none of the kestrel stuff is true, it was lovely to see something so special.

It was almost a relief to get back to the business of fighting cancer. This week has been a nightmare thanks to the actions of one person. I don’t even know if they are a man or a woman but The Idiot has caused me lots of trouble. And yes, they know that I have cancer.

I have wasted hours worrying. I even spent a whole day of my precious life just crying in bed. This big stressful thing has come along just when I really don’t need it. I won’t go into details as it’s complicated and I’ve had to explain it far too many times.

The day before chemo I didn’t put on much make-up as I knew I’d probably end up in tears. Ahead I had some horrible hospital tests and the prospect of throwing away huge chunks of time on the phone because of that big stressful thing.

I decided to base myself at Maggie’s Cancer Care Centre. It’s a place offering coffee and support. It’s right next to a hospital but it doesn’t look or smell like one. There are a number of Maggie’s Centres around the country, mine is a beautiful oasis, designed by a famous architect. I was hoping for some friendly words of advice and perhaps some cake. I got that and much more.

I was already on my phone talking about the actions of The Idiot when I walked into Maggie’s. I could see that one of the staff wanted a word with me. Once I’d finished my call, I was asked if I wanted my make-up done by a professional. Oh, let me think about that for a few seconds.

The make-up session at Maggie’s was only interrupted twice by my mobile and that big stressful thing. However getting some smokey eyes certainly relaxed me.

Later when I ended up sitting in a hospital corridor with only a couple of cotton gowns to cover my dignity, I looked a lot more glam than usual. I continued to take yet more phone calls relating to The Idiot but I felt stronger. Thanks to some very lovely people, hopefully it’s being sorted now.

From the random make-over to the magnificent bird of prey, life didn’t seem quite so bad. Then during treatment I got an upgrade from chemo club class. I didn’t have to sit in a big pink chair; I had a proper bed in an en-suite room.

Perhaps I got the side room as I was living dangerously. Once again I had opted to cut my steroids. Now I’m on a quarter of a dose. Reducing them before didn’t give me any problems. Mum and my friend Chantal, the flower girl, kept an eagle eye on me. But it was fine. I just slept in the comfy bed covered by a thin blanket.

I dreamed of the kestrel. My warrior bird of prey hovering in the sky, waiting for the perfect opportunity to swoop on my tumour. Attacking it and killing the cancer.

Normally I focus on 007 doing my dirty work. Could it now be a case of move over James Bond there’s a new bird in town?

Back to my old self

I have a hot date later today! 

I’m feeling both nervous and excited. By all accounts this man has made countless women very happy. I’m hoping he’ll do the same for me.

No, this isn’t George the doctor from the other day who made my healthy heart flutter. The person in question is the hospital’s wig-man. It’s time for him to sort me out.

I need to choose my NHS wig. I can only do this at hospital. Today I’ve got more breath tests plus the usual pre-chemo stuff.

My hair has been slowing thinning rather than falling out thick and fast. Sadly the bald patches are getting bigger. My comb-over is getting higher.

It’s incredible that my hair has lasted this long but I reckon that soon I’ll have to shave my head.

I want to get my wig while I’m still feeling kinda okay. Due to the relentless build-up of the toxic drugs I’m worried that in the next few weeks I’ll feel so horrendous I won’t want to get out of bed most days.

My wigs have been locked in a hospital cupboard just waiting for me. I picked out a selection from a catalogue a few weeks ago. I now have to fit them on and decide which one I want. They all look pretty much like my hair used to.

There weren’t many that I liked. It seems that the world of wigs is stuck firmly in the 1980s. If you want to look like Princess Diana then you’re in luck. I’m hoping that my wig will be more Duchess of Cambridge.

The hair may be taking a while to come out but the chemo really must be working its magic as my eyelashes and eyebrows are disappearing. I can disguise these with make-up. The loss of head hair is harder to hide.

I still have Barbarella, the blond bombshell of a wig, on stand-by so why do I need an NHS one?

As I start to feel more and more tired, my confidence is quietly ebbing away. I’m not really sure that I could pull off the Barbarella look every day. In the past it would be no problem. I’m quite outgoing, well I was. Since being diagnosed with cancer I don’t always have the energy to be the person I used to be.

It’s ironic that it’s going to be easier to wear a wig that makes me look how I used to even if I don’t always feel like my old self. But the chemo won’t last forever. In a few months, I may be bald but hopefully I’ll be feeling a lot more like I want to be Barbarella.

Look into my eyes

“Don’t worry I won’t make you bark like a dog.”

Now those are the kind of reassuring words you want to hear when you’re about to be hypnotised.

I get my next evil chemo cocktail tomorrow. After round one I now know just how bad it’s going to be. To help me cope with the chronic pain I’m trying hypnotherapy. Prescription drugs and daytime TV are not really doing the trick.

I went to hospital for the hypnotherapy. It felt like we were in the basement next to the boiler room. I lay on an examination table covered by rough blue paper to protect me from the previous person’s germs.

The woman who was about to put me under wore academic looking glasses and a conservative suit. She explained that this was nothing like stage hypnotism and that she was medically trained.

Part of me was disappointed that it wasn’t Kenny Craig, the character from Little Britain with too much guy-liner, telling me to look into his eyes.

I was lulled into a trance and told to think of a special location, real or imagined. The first place that came to mind was my old flat in Kiev which looked out onto a row of Soviet-era tower blocks.

Nope, I need somewhere much more exotic so I thought of my perfect desert island.

Apparently the hypnotherapy will help to stop the chemo pain by getting my brain to tell my body to chillax. Or something like that. Whatever happened on that tropical island, it felt lovely. I’ll have a couple more sessions but so far it seems like the pain has eased.

What’s even better is that this is free. It’s what I like to call a cancer bonus. It’s rubbish going through all this but you do get some nice stuff to make it just a little bit easier.

Last week I took part in a pampering session. A charity called Look Good Feel Better holds workshops to help women deal with the changes in appearance caused by the cancer treatment.

I was feeling tired and emotional when I arrived. Insomnia caused by the chemo means that I cry very easily these days.

A group of us sat around a long table. We each had a mirror so I was able to watch the tears rolling down my face. Beauticians gave us all a big bag of expensive make-up and advice on how to do things like draw on eye brows that have fallen out.

By the end of the session, my mood had lifted and I looked like I was ready to party. It was a shame that I was so exhausted and had to go straight home.

With my make- up taken care of, I need to concentrate on my hair.

Since I last updated my blog it has properly started to fall out. If I run my fingers through it, whole handfuls of hair come out. I found it very upsetting yesterday but then I’d only had two hours sleep that night. Today I’m not so worried. I realise that it’s just part of the process of getting well again.

I think it will take a few days for it all to drop out. It’s a good job that I should get to choose my NHS wig tomorrow.  It’s another cancer bonus I’d rather not be getting but I’m quite excited to see what I’ll be wearing for the next few months.

Because of this I’m not dreading chemo number two quite so much. Hopefully I’ll be able to post some pictures so you can see my new look for summer!