Chemo#12

This is Ruby’s chair. Ruby is one of the regulars at the chemo cocktail bar. Like many of the others, she’s twice my age.

I’m calling her Ruby although this isn’t actually her real name. I don’t want to identify her but I wanted to write about something she said.

After the drama of my last visit, my chemo treatment has now become almost an all-day affair. While I always have a friend or two on hand to keep me company- this week it was Kath and Chantal – Ruby is often alone. But don’t go thinking that Ruby is a helpless old lady.

This week hospital was the busiest I’ve ever seen it. It was late morning when we arrived. There wasn’t a spare chair in the place.I was given a bed that was free on one of the main chemo wards. Everyone around me had more miles on the clock and seemed much sicker or sleepier. I offered the bed to the patients who had chairs in case anyone else fancied it. I had no takers.

The bed proved to be a perfect picnic table. We laid out our lunch on the white sheets. Ruby had also come prepared. She too preferred not to eat the hospital food. With one arm attached to an IV drip she wasted no time in calling Kath over to help get her lunch out of her bag. My friend arranged it on the table in front of Ruby.

“Can you get me a coffee now please?” She then said to Kath.

It wasn’t a question. Ruby asked in way that was friendly but also confident and assertive. She didn’t apologise or prefix it with a “hope you don’t mind”, or “can you do me a big favour”. She knew it wasn’t too much to ask. Ruby was hooked up to the drip which was plugged into an electricity socket at the wall. She had toxic drugs dancing through her veins. While Kath was fit, healthy and just visiting.

I’ve known Ruby for a while. She has absolutely no problem in asking anyone who’s passing to get her a coffee – milk, three sugars – from the trolley in the corridor.

It might seem like such a small thing but having this sort of no nonsense approach is so important when it comes to your health. I’d been thinking about this a lot after a woman had left a comment on the blog to say that she was about to get tested for ovarian cancer. Her husband had heard an interview I’d done on the radio and recognised some of the symptoms she was having.

In case you’re wondering some of the main ones are bloating, eating less but feeling fuller and abdominal pain.

The problem is that these symptoms are so vague. It can mean it’s difficult to get diagnosed. You need to be determined especially when you suspect something is seriously wrong.

Last month I met an inspirational woman who had ovarian cancer a while ago. When she first had the symptoms, she went to her GP. He said she’d probably pulled a muscle and wouldn’t need any tests. She told him that he was talking rubbish or words to that effect!

Soon after the cancer was discovered. She had a better chance of surviving because she didn’t accept what her GP had said. It just shows how powerful it can be, not taking no for an answer. It’s the kind of attitude that could help to save your life.

No 41 on the List for Living

41) Be a model and work the catwalk

Wow the response to my List for Living has been incredible. Some people have now come up with their own lists of the things they’ve always wanted to do. A BBC friend has been so inspired that she’s in Africa right now! I can’t get over how many people have contacted me offers and suggestions. Thank you so much. As I’m shattered from the chemo, most of it will have to wait a while. But not everything…

After hearing about my list, a woman called Adele got in touch to ask if I wanted to be a model. Every year she organises Tea for Ovacome, a champagne afternoon tea and fashion show to raise awareness about ovarian cancer and funds for the Ovacome charity. Like Adele, the other models all had personal experience of the disease. I didn’t need to be asked twice!

I’d put this thing to do on my List for Living as I wanted to celebrate who I am now. Cancer changes you in so many ways. Not just medically and emotionally but also physically. It can make you ever so skinny. Or, as in my case, you go large.

When the disease came back a year ago, I was fit and healthy. But the chemo, the steroids and the not doing too much has meant that I’ve put on weight.

The clothes that we had to model were all on the small side but luckily I found a couple of dresses that I could squeeze into.

I may not look like I used to but my body has done a brilliant job in keeping me alive. Far too many women die within a few years of being diagnosed with ovarian cancer. Amazingly my body has beaten the odds. It manages to keep battling against the stupid cancer every time it comes back.

Compared to choosing my clothes, getting my hair sorted out was a lot simpler. My lovely hairdresser Angela offered to prepare Candice. The WAG wig was demanding some serious TLC. I left her with Angela. After cutting and curling she was beautiful again and runway ready.

As we rehearsed on the big day, Candice made herself comfortable. A couple of hundred people had bought tickets to the charity event which was at one of the fanciest hotels in London. In just a few hours they’d be watching us strut our stuff.

I have to admit that I felt like a right idiot to start with. I wasn’t exactly graceful. I’m pretty tall and so normally I don’t need to wear killer heels. However it felt empowering to be with so many strong women who had such similar stories to me. We each had two looks to model. Daytime and then night wear.

Just before the show began, I felt a bit anxious, nothing too bad but it did make me wonder why I’d wanted to do this. I think that most of us had the jitters. As we chatted nervously one of the models pointed out that we’d all been through a lot worse.

So true. This time last year I was in hospital after my massive operation, I’d been in intensive care after I came close to dying and I needed a Zimmer frame to help me get around. Now I was about to sashay down a catwalk.

We waited in our daytime outfits in a long, narrow corridor which was lined with abandoned furniture. Then one by one we headed out into the opulent room.

By the time it was my turn, it felt like my heart was beating as loud as the music. Wearing a summer dress and a big smile I walked out in front of the audience that included mum and some of my friends.

Being a model, just for a few seconds, was a surreal but I loved it. And the people watching sounded like they were enjoying the show too.

When I came off the catwalk I felt quite emotional. Backstage we all hugged each other before rushing off to change our outfits. My night time look wasn’t exactly subtle.

This time as I waited for my catwalk cue I felt much more confident.

It was fantastic doing something else from my List for Living. We all worked that catwalk although Kate Moss certainly has nothing to worry about!

We might not have been supermodels but we were something much more powerful, we were all cancer survivors.

What I like about my list is that you get much more than you bargained for. Thanks to the charity event I’ve met some very impressive women who’ve beaten cancer or like me are living well with the disease.

It also dramatically shifted my mood. In the days leading up to doing no 41 I’d been quite miserable. The relentless treatment and tiredness is tough to deal with. But that high from the fashion show is still with me.

A letter to my cancer

Dear Cancer,

It was six months ago that we were reintroduced. I’d already got rid of you once and I can’t believe that you came back for more. This time I only had a fifty fifty chance of surviving. Like the flip of a coin. Well, heads I won.

After half a year of hell you are now just dust and dead cells.

You started out as ovarian cancer, if that wasn’t bad enough you took the liberty of spreading around my abdomen. It took a team of surgeons the length of an average day at the office to remove all visible traces of you. I imagine that the tumours have long since been incinerated. All that’s left is an awesome battle scar.

The next step was to kill off any lingering reminders of you. I had chemotherapy to destroy the teeny tiny cells that couldn’t be seen. On Wednesday I’m having the last of my six sessions

Like a coward you left me before the chemo had even finished. Repeated blood tests show that you are no more.

I’ve not just beaten you; I’ve proved just how much I want to live. My body hurt so badly when I woke up from the operation that I thought I was dying. I wasn’t.

But the drugs to deal with the pain almost killed me. They lulled me into a deep sleep. I quickly slipped into a happy bubble of unconsciousness and stopped breathing. I was only a few minutes away from my own death. But I fought back.

I wish I’d never met you. Okay maybe that’s only partly true. In many ways you’ve changed my life for the better. During the cancer treatment ten years ago I came up with a big list of things I wanted to do. Afterwards I went out and chased my dreams. The reality was even better than I dared to hope for.

So why did you come back? I thought we were done. I really didn’t need another reminder that life is precious.

When I was in the process of being diagnosed the second time round someone who should have known better suggested the cancer could be terminal. It wasn’t. She told me this devastating news over the phone. I was sitting on my bed on top of my pink stripy duvet at the time. As I cried my life didn’t flash in front of my eyes. Instead I saw images of my future, of what I was still to achieve.

I’m so angry that I’ve had to put almost everything on hold. Hey cancer – in a few hours I get my life back.

Over the past few months I’ve done everything I can to annihilate you. I’ve been having the maximum strength chemo cocktail. It’s been a marathon of pain, sickness and complete exhaustion but I haven’t considered asking for a lower dose.

Chemo has so many petulant demands. It wakes me up in the middle of the night. The poisonous chemicals make me run to the bathroom to throw up. I have no eyebrows now and only six eyelashes. I’ve watched my lovely hair fall out, there’s just a thin covering left to go. Then there have been the bugs, bacteria and infections. I never expected to have an emergency stay in hospital.

And yet, you haven’t managed to break my spirit. I’ve even been able to do some things which I thought were virtually impossible. Just days after my last chemo I managed to get to the Olympic Games. When the cancer treatment is over, I won’t collapse in a heap at the end. I’ll be flicking the V sign at you as I cross the finishing line.

Don’t worry, I won’t forget about you. How could I? There will be tests and scans every few months. When I go to hospital for the results I won’t be able to think about anything else. You’ll be constantly me on my mind.

However I refuse to be scared of what hasn’t happened. Because of you, I appreciate every moment. Well almost every moment. And so because of you I live.

I’ve now beaten you twice. TWICE. I want you to know that if you come back, I will beat you again.

Goodbye stupid cancer.

Helen