Kindness of strangers

So what’s the best thing to do the next night after going to the James Bond premiere?

Go to see the film again?

Yes, 24 hours after watching Skyfall at the Royal Albert Hall, I was at the cinema for more 007 action!

It was thanks to my friend Rache. When not organising fancy dress themed nights out, she loves to enter competitions. She’s very good at winning and has bagged some incredible prizes.

Rache, me and Barbarella

For months Rache had been trying to win tickets for the Skyfall premiere for me. She wasn’t alone in doing this.

She’s part of an online forum for fellow compers. Many of them also did what they could by entering quizzes and competitions for me. These were people I’d never met before, they only knew me from this blog, yet they put in lots of effort into doing something lovely for me.

And they came up trumps!

A man who goes by the online name of Greatbigrobot won tickets to a VIP advanced screening of the movie for me the night after the premiere. I was delighted. Then a couple of days later the charity, the Willow Foundation managed to get me invited to the premiere.

The tickets for the advanced screening were non-transferable so I ended up with a double dose of 007.  Well, you can never have too much Bond in your life.

Anna, Bond girl for the night

My friend Anna came with me to the advance screening. It was a really great night and another fabulous excuse to wear Candice and a posh dress. You wait for months for something like this to come along and then you have two big nights out in a row. Not that I’m complaining.

Before the film we were served champagne by handsome waiters, played roulette and met men in tuxedos. Surely this is what it must be like to be a Bond girl?!

Although I don’t imagine that Bond girls normally drink champagne from plastic glasses.

Watch out Daniel Craig!

I was really touched that someone won the prize for me. But this wasn’t the first random act of kindness. Since being diagnosed, people that I don’t know have sent me presents.

When I went into hospital I received a care package which included tissues for tears and a notebook for ideas. During chemo I received a handbag in the post to help me look forward to happier times. Just a few days ago a Twitter friend sent me a teal green hat and earrings. Her gifts were to help make my bald look better and feel warmer.

I’ve also had cards from people who explain that we’ve not met but they know me through someone.

I’ve had so much love on Twitter too and from everyone that’s left comments on this blog.

Of course, the support I’ve had from family and friends has been wonderful but I didn’t expect so much good will from strangers. Knowing that lots of people, including many I’ve not met in real life, are cheering you on is an incredible feeling. It always gives me a boost and has been more help than I could have imagined.

So, thank you.

Never for a second would I have chosen to have cancer. It may be the worst of times but it’s also shown me the best of so many people.

Good cold, bad cold

If you had to pick a time of year to have a chemocation then I suppose autumn/winter is perfect. A chemocation is rather like a staycation. Only this is no holiday at home but chemo enforced time off. And I can’t wait for it to be over.

Thanks to my incredible tiredness I’m still mostly stuck indoors. One of the perks of an A/W chemocation though is being able to have quality time by the log fire at my parents’ house. There are worst ways to spend an autumn afternoon.

But really I’d rather not be stuck indoors. Slowly I’m building up my stamina so that I can spend more time outdoors getting cold and wet.

The chilly weather means that when I do go out I can easily wear a hat over my shaved head and it doesn’t look out of place. I like my new number 3 hair cut but I’m not going to be showing it off in public anytime soon. That would just take too much energy. It’s less stressful to just blend in.

Raquel, Candice and very occasionally Barbarella are also helping keep me warm. I quite enjoy wearing my wigs. They still itch like crazy but over heating is no longer such a problem.

Ten years ago when cancer last made my hair fall out, it was all very different. Back then I told hardly anyone, I was so embarrassed. I didn’t even have a name for my wig. It was identical to my old hair. I didn’t like wearing it and I never realised how handy it would be on my travels.

I’d just moved to Moscow for the BBC and it was the very start of winter.

Snowy sunset from the BBC Moscow Bureau

Russia was properly freezing, exactly how you’d imagine that it should be. I’d wake up every day hoping that it had snowed overnight and often I was excited to find that it had. At times just being outside was painful; as you breathed in, the icy air would scratch your throat and made your lungs feel like they were on fire.

One Sunday afternoon, not long after arriving, I ventured out to a market on the edge of the capital. It was next to one of the furthest stops on the metro. On the way there I sat opposite a pensioner. The woman with dyed red hair was dressed in fur from head to toe. She eyed me suspiciously and then gave me a right telling off.

My crime? Not wearing a hat.

As way of an apology I said that I was English. I didn’t feel like revealing my lack of hair to a random stranger. However she was right to chastise me. It was so arctic outside that within minutes of getting off the metro, my mobile phone had frozen.

Yet my wig was brilliant. My fake brown bob kept my head beautifully warm.

These days I tend to wear hats a whole lot more, even when I’m inside. It turns out that my internal temperature gauge has bust.

I am officially cold.

All those evil chemocation cocktails are to blame. My body thinks that I should be around 35c. Unless I’m in a swelteringly hot room I tend to spend much of the time shivering. According to my hospital handbook, my temperature is a code red and I should alert the on-call oncologist straight away.

Ever since my cancer operation my feet have been a bit numb and never that warm. Now they are like blocks of ice. It’s like I’ve just come in from the cold after a day braving the elements in Moscow. So I wear thick ski socks at all times and I have a selection of hot water bottles which get a lot of use. Sometimes I sit in the living room wrapped in a duvet next to the fire.

But apparently my low temperature is nothing to worry about. The problem should just improve all by itself. In the meantime I’ve been told to wear lots of thermals. Here’s some freaky logic. It may be warmer inside but I tend to shiver less when I’m outside.

Maybe this is my body’s way of saying that I need to get out more as the chemocation is coming to an end.

Cancer makeover

Chemo number four was very different. This time I was sat in a hospital ward with a lively group of chatty women. All of us with various stages of hair loss.

My friend Tamsin joined me for some chemo coffee. It made me realise that maybe it’s not my confidence that’s been effected by all this treatment. It could be that I just spend so much time on my own.

With gossip, cake and fancy chocolates, I was soon feeling like myself.

The wig-man did keep his promise even though he was almost two hours late. I’d never normally wait that long for a man but this was no ordinary date. Besides I had a needle in my hand and a toxic cocktail on ice.

By the time he arrived we were ready for some fun.

I had the fittings in a side room that’s mostly used for private consultations. The kind you never want to have. If there’s something that a doctor can’t say to you on the ward then it’s likely to be horrific news. I was so glad to be in there for a happy occasion.

And it was happy.                               

I’ve finally come to terms with my falling out hair although I’m going to hold off getting it shaved off. Hopefully not until the chemo is over. I like still having hair while I’m so ill. Somehow it makes me feel not quite so bad.

It’s crazy that it’s been so difficult. When I last had cancer I wasn’t nearly so worried. Perhaps because it was another sign that I really did have cancer again.

I was determined to have long light brown hair, similar to how I used to look. I wanted to be able to hide behind my old hairstyle.

But as I was feeling much more like me and a whole lot braver, it didn’t quite work out like that. I may soon be bald but I’m also going to be blonde and bold.

My new look!

But not like this one below. Woah, I’m back in 1980s.

That’ll be a no then

Tamsin had difficulty taking the photos as she was laughing so much. But not at the next wig.

Oooh big hair

Wag-tastic, I had to have this one too!

It’s almost like my Barbarella wig, only a bit less of a bouffant. It’s something that could be straight out of the TV show, The Only Way is Essex with a touch of Kate.

This will be my going out wig.

And it won’t stop there; I’m going to get a whole wardrobe of wigs. When I’m bored of being blonde, I may go red, blue or black. Whatever takes my fancy. So much for fading into the background.

But before I could do any of that it was time for my chemo to start.

The treatment is getting tougher. After a couple of hours, the drugs made me so dizzy that I had to get into a hospital bed and sleep for the rest of the day.

It still feels like I’m a long way off from being well enough to wear the wigs for real. But at least I’m now on the home straight.

Back to my old self

I have a hot date later today! 

I’m feeling both nervous and excited. By all accounts this man has made countless women very happy. I’m hoping he’ll do the same for me.

No, this isn’t George the doctor from the other day who made my healthy heart flutter. The person in question is the hospital’s wig-man. It’s time for him to sort me out.

I need to choose my NHS wig. I can only do this at hospital. Today I’ve got more breath tests plus the usual pre-chemo stuff.

My hair has been slowing thinning rather than falling out thick and fast. Sadly the bald patches are getting bigger. My comb-over is getting higher.

It’s incredible that my hair has lasted this long but I reckon that soon I’ll have to shave my head.

I want to get my wig while I’m still feeling kinda okay. Due to the relentless build-up of the toxic drugs I’m worried that in the next few weeks I’ll feel so horrendous I won’t want to get out of bed most days.

My wigs have been locked in a hospital cupboard just waiting for me. I picked out a selection from a catalogue a few weeks ago. I now have to fit them on and decide which one I want. They all look pretty much like my hair used to.

There weren’t many that I liked. It seems that the world of wigs is stuck firmly in the 1980s. If you want to look like Princess Diana then you’re in luck. I’m hoping that my wig will be more Duchess of Cambridge.

The hair may be taking a while to come out but the chemo really must be working its magic as my eyelashes and eyebrows are disappearing. I can disguise these with make-up. The loss of head hair is harder to hide.

I still have Barbarella, the blond bombshell of a wig, on stand-by so why do I need an NHS one?

As I start to feel more and more tired, my confidence is quietly ebbing away. I’m not really sure that I could pull off the Barbarella look every day. In the past it would be no problem. I’m quite outgoing, well I was. Since being diagnosed with cancer I don’t always have the energy to be the person I used to be.

It’s ironic that it’s going to be easier to wear a wig that makes me look how I used to even if I don’t always feel like my old self. But the chemo won’t last forever. In a few months, I may be bald but hopefully I’ll be feeling a lot more like I want to be Barbarella.

Diary of a chemo girl

I’m still so deliciously happy at properly getting rid of the cancer.

Yesterday I had more chemo as it was back to the business of keeping it beaten. Today I’m feeling oh so incredibly sick. I still have a few more months of treatment to go but at least I’m now officially half way through!

To celebrate here’s a blow by blow account of what I go through every three weeks. There’s much more to it than having a bunch of nasty drugs…

Tuesday 19th June – Preparing for chemo

9am: Wash my hair in tepid water so that it’s ready for the frozen hat on chemo day. Depressingly loads of it comes out.

10am: Start drinking.

Sadly it’s only non-alcoholic. I need to make sure I’m not dehydrated. Apparently it’s good to drink milk. What’s better than milk? Chocolate milk.

11am: Hypnotherapy at hospital. Once again I go to my imaginary tropical island and somehow it appears to work. The bad but bearable leg pain that I constantly get seems to go.

Lunchtime: Rest at Maggie’s Centre. It’s a beautifully modern building in the grounds of the hospital. Run by a charity, it’s for people dealing with cancer. I curl up on the big sofa in the living room.

2pm: Get a taxi to a different hospital in another part of London. We drive past BBC TV centre. I really want to stop the cab and go to work. I could be starting a late shift rather than another round of medical appointments.

2.30pm: At the chemo unit I get given a pink laminated card and wait for blood tests. It’s like a speedy boarding pass and means I can jump the queue. The tests will determine if I’m well enough for the horrible treatment.

The man taking the blood tells me I have chemo veins. They’ve gone into hiding but he manages to hit one first time. I accidentally watch as he wiggles the needle and then plunges it deeper into my arm to make the blood pour out. It’s pretty gruesome but I don’t actually feel anything.

3pm: Appointment with my lovely consultant, the Professor. As I wrote in my last post, he gives me all sorts of brilliant news, a big hug and sends me on my way.

4pm: My friend, Chantal the flower girl gives me a lift home in her big flower van.

On the way to my flat she has to make an emergency delivery.

5pm: Ring the hospital. Happily the results of the blood tests are good so chemo will go ahead. Rest on my own sofa.

10pm: Start the steroids. I have to take ten of these tiny tablets. They stop me from being sick but they make me feel wired.

Midnight: Still awake. The steroids also make me eat peanut butter on toast and ice cream.

Wednesday 20^th June – Chemo day

7am: More steroids. Another ten tablets and I’m wide awake despite only having about three hours sleep

10am: Back at the hospital, this is where I have to sit. All day. I share the room with five others.

10.30am: I cover my hair in conditioner and the chilly hat goes on. My hair has to freeze before the chemo can begins. It hurts like hell.

A nurse puts a needle into a vein on my left hand. I’m attached to a drip that will deliver the anti-cancer drugs. First though I’m given even more steroids and other clear liquids to stop nausea, pain and any allergic reactions.

These make my face feel funny, like I’ve drunk too much vodka. As the dizzying drugs race around my body, I start to get a puffy face.

11.20am: The chemo finally starts. It’s so toxic that my nurse use gloves to handle the clear plastic pouches. I have two types of chemo, this first one takes a few hours to slip into my veins.

I have to wear two wrist bands. White to say who I am. Red to make it clear that I have a drug allergy. That’ll be the drug that almost killed me after surgery.

11.30am: Listen to my chemo mix tape and attempt to sleep in my chair under a white hospital blanket. I feel so tired and cold.

2pm: A friend comes over for a chemo coffee. She brings a big bag of sweets. I’ve eaten so much cake, chocolate and sweets since I started this treatment. Opps!

2.30pm: I get the second type of chemo; this is the most dangerous one. It makes your hair fall out among other awful things.

3pm: Sleep. As I drift off I try to dream of Daniel Craig and his army of James Bond cancer killers. But instead I keep thinking of the fantastic things I’m going to do when all this is over.

4pm: The last drugs pouch is empty and all the evil of chemo cocktail is now in my body. I’m unhooked from the drip. My hair is frozen to the cold cap so it has to stay on for a bit to allow it to warm up.

4.30pm: I have to go for a chest x-ray. Walking just a few metres makes me breathless so The Professor wants to make sure it’s nothing serious.

5pm: The flower girl picks me up and I start the long journey back to the house where I grew up. My hair is still defrosting. You don’t have to look too hard to see one of my bald patches.

I don’t feel too bad considering but the side effects of the chemo are like a time bomb and you never know when they’ll go off.

8.30pm: Still feeling kinda normal as I arrive at my parents’ home in the countryside.

I know that I may not lose my hair.

But I don’t quite believe it so again I’ve packed Barbarella just in case.

Becoming Barbarella

As I don’t have a proper wig yet, Barbarella is on stand-by.

Barbarella is a massive long blond wig that I wore to a friend’s fancy dress party last year. I could never have imagined that just over six months later I might have to wear it for real.

The fake hair came with a 60’s style zip-up dress. The outfit was supposed to transform me into Barbarella as in the science fiction flick.

It didn’t quite work out like that. (That’s why this photo from the party is just a head shot!)

Incredibly though I still have hair.

I thought I’d be bald by now. The chemo should have seen to that a couple of weeks ago. Instead as I write this I have almost a full head of really greasy hair.

I’m still following the advice of the hospital’s wig man. To try not to wash it very often, to preserve what’s still there. I can’t even put it up or do anything that would encourage it to fall out. That includes using dry shampoo.

Please don’t tell me that after a while it starts to clean itself. If I was backpacking around Thailand then I wouldn’t mind trying out that theory. Going through treatment for cancer with skanky hair is a whole different matter. I can safely say that after more than a week, my hair does not self-clean.

It just continues to fall out in great big handfuls especially on the rare occasions that it is washed.

My hair is thinning but I must have so much of the stuff normally that you can’t really tell. Well apart from a bald patch that I can cleverly disguise with a comb-over.

I reckon that it’s just a matter of time before I have more bald patch than comb-over. When that happens I’ll get it all shaved off. I have to say I’m feeling a lot more relaxed now as I wait for that moment.

I won’t get my NHS wig for at least another week and I don’t want to buy any wigs until all my hair is gone. So if I do have to become Barbarella anytime soon then I’ll be happy to be blond but I certainly won’t be wearing that silver dress again!