Chemo#2

Evil. Thats the only way I can describe chemotherapy. My second cycle of the treatment was horrific. Not the day itself. That was fine, fun in the usual speeding time with special people chatting, drinking coffee and trying to ignore the drip that was feeding me the toxic cocktail of drugs. No, it was the days afterwards that were hard to handle.

As the steroids wore off, the horrific-ness kicked in. It was one of the worst chemo hangovers that I can remember having. My mood felt as awful as the physical symptoms. The last time I felt that ill was last year when I was in intensive care following major surgery and a brief, unexpected, flirtation with dying.

The only positive thing I can say is that there was none of the nausea of chemo no 1. I didn’t have any projective vomiting yay! Thanks to everyone who tweeted me suggestions about what anti-sickness medicine I should try. The new tablets are working beautifully.

Then it lifted. After almost a week, the nasty chemo symptoms just left me. I’m still tired but at least I feel human again.

Luckily this happened just as I was due to do a day at work. Okay, it was down to more than just luck. I had thought that I’d be recovered by then.

You may be wondering why I still want to do my job. It’s totally my choice to work. I don’t want the cancer, the chemo and the uggggggh feelings to be the only things in my life. Besides, I really enjoy it.

On Monday I was reporting on the impact of the storms for BBC News. It wasn’t feeling ill again that I was worried about but more the windy weather. This was my first day wearing a wig again. Not such perfect timing.

When I was stood outside I had the straps inside the wig on their tightest setting. It was a vice like grip and it hurt a bit but at least it kept my wig secure on my head. There would be no chance that a cheeky gust of wind would give it lift off!

It’s the same wig as I wore on TV before, only my hairdresser Angela has given it a new look. I do have a whole new autumn/winter collection of wigs to wear but I want to start off with something I’m comfortable with.

My hair seriously started to fall out just as I was feeling so desperately ill. Great big handfuls of my lovely, new hair. I almost had a proper fringe. It seemed that most of it slid off at night and onto my pillow. Previously my hair has slowly left me so the speed at which I went bald this time was a shock. It took about a week before all I had was some lonely tufts. It looked as horrific as I felt.

This is one of the hardest parts of the treatment. You understand that you are going to be very ill but it the fact you lose your hair as well is very upsetting. You no longer look like yourself. The chemo takes away your identity.

I knew there was something unpleasant I had to do. A few days ago I had what remained of my hair shaved off. There is nothing left. My appearance has gone from poorly to pop star. Now I look like Jessie J when she shaved her head. Ha! I’m only joking. My head looks all white and weird however it is better than it was. Most importantly, instead of letting the chemo do something to me, I took charge. And this makes me feel strong again.

Chemo-cationed

For the first time in months I woke up without a nose bleed. It’s a sign that my chemo-cation is coming to an end.

It hasn’t been a typical holiday although I’ve mostly just done a whole load of nothing. As I recover from my anti-cancer treatment, the hardest thing to deal with is the tiredness.

It’s been a few weeks since I finished my chemo, since then I’ve mostly slept or sat in a comfy chair but my favourite place to be is outside lying on the grass with the sun on my face. A soft fabric hat protects my thinning hair (more of that later.) Sasha the dog likes to sit next to me. I ask her why when I’ll stop being ridiculously exhausted. She has no answer.

Some of the side effects are easing. So, my moon-face seems to be deflating. But others are actually getting worse. My feet are so swollen that wearing shoes is painful. My toe nails and one finger nail appear like they’ve been dipped in acid.

My eyebrows and eyelashes are growing back but the hair on my head is falling out. And I mean seriously coming out. Towards the end of the chemo cocktail sessions my hair had started to grow. Now that it’s falling out in handfuls it seems so cruel. It’s difficult to stop myself constantly checking but each time I’m rewarded with a load of my hair between my fingers. I reckon that I’m going to need my wigs for longer than I thought.

Compared to what I went through during my treatment, both the hair loss and tiredness seem much harsher. It’s meant that my chemo holiday has been tough however there was one amazing afternoon when I got away from it all.

A couple of weeks ago I went to a Buckingham Palace garden party. As you do! Along with several thousand smartly dressed people, I had afternoon tea with the Queen and the Duke of Edinburgh.

My fug of fatigue was gone, it felt as if I’d woken up and for a few hours I was back to my old self. I think it was down to being part of something so special.

During my chemo-cation I also had a trip to Accident and Emergency. Not quite so pleasant. Last Wednesday I caught an infection and my temperature started to rise. As this happened before I knew not wait too long before going to hospital. When we arrived my temperature was bad but not critical. We sat and waited to be seen by a doctor.

Over the next hour I felt increasingly ill. During that time we were joined on the hard metal seats by five other patients. Separately they hobbled in and bizarrely everyone seemed to have twisted an ankle.

My temperature wandered into the danger zone. I was eventually given a bed in the emergency ward. By that point my blood pressure had dropped and my heart rate was worrying.

After some treatment and a night at the hospital, my immune system was back in charge. After the battering that it has taken recently, I was so pleased that it was able to fight back. It was only when I’d properly woken up that I realised I was staying in yet another room without a view.

I was able to leave hospital the next day but the infection took its toll and made me even more shattered. Ugggh.

Finally, life is now returning to normal and I worked at the weekend. At the end of my shift I felt like I’d done a massive work-out at the gym. I had no energy left. Not just my legs, but also my arms really ached. This was a different kind of tiredness. It comes from deciding that the chemo holiday can’t go on forever and pushing myself to do more.

Considering my diagnosis – this is a luxury. I’ll never beat the cancer but I can enjoy the time when I feel good and I’m not having treatment. I’m more than happy to have this sort of exhaustion as it shows that after 17 sessions of toxic chemicals I’m slowly starting to feel better.

Hair we go

Something strange happened. I was taking off my make-up recently at the end of a long day.

Make-up is the cancer fighter’s friend. It helps you to look kinda normal and feel good. It fills in the gaps, giving you eyebrows and lashes plus a healthy glow – all the things that go missing.

After my chemo hair loss, I stopped looking at my face too closely and put my make-up on using a rubbish tiny mirror. I didn’t want to focus on what wasn’t there.

Anyway, that night I was removing my make-up. The eyeliner was proving to be quite stubborn, it just wouldn’t come off.

I found a proper big mirror that was well lit. I stared at my eyes and rubbed harder. Then I realised that it wasn’t smudged make-up. Ohhh no.

Amazingly, it was my actual eyelashes. They’re back!!

I was so surprised to suddenly see them again. I thought that it would take much longer. Not only that but I also have eyebrows again! Even the hair on my head has started to come back thick and fast.

I now have a brown coloured scalp. It’s like snap-on Lego hair. It’s way too short to go wig-less. Besides, I didn’t choose to have this very severe hairstyle; this is what cancer did to me. That’s why I don’t want to be seen out in public like this. I’m sure no one would care if I did but that’s not the point.

The toxic treatment takes away much of your identity but it also gives you a chance to experiment. I think that why I’ve enjoyed being blonde. I’ve had fun being Raquel and Candice which came from the hospital’s wig man.

I decided that it was time to see what else was out there and went wig shopping. I tried on plenty of new styles but there was only one that I wanted.

So, what did I get?

Me.

Candice, Raquel, the new wig and Barbarella

I chose to be me again. My new wig is just like my old hair. A bit shorter and slightly lighter but very very similar to what I once was.

It feels much softer and more natural than any of my other ones and moves almost like real hair. For my fellow wig wearers – it has a monofilament top and comes from the Vicki Ullah Wig Boudoir – hey get me!

Right now, my new wig has no name. I can’t think of anything that seems suitable. Maybe it’s because this isn’t a new identity. This is me.

But, don’t worry, I won’t be putting the other wigs back in their boxes just yet. I’m now going to a part time blonde.

To baldly go

Getting your head shaved is one of those big moments. It’s such a bold statement. You can no longer pretend cancer hasn’t happened. Some people get it done as soon as the treatment starts but I waited as long as possible.

For most of my chemotherapy I wore an ice cold cap which protected the hair follicles by freezing my scalp. It worked pretty well but was so painful that in the end I had to ditch it. Thats when the hair loss began properly.

I didn’t go completely bald. Oh, no. I was left with big freaky tufts of soft fluffy hair. It was a cross between a mullet and a mohican. A mullhican if you like.

Meet the mullhican

I really needed to get it shaved off so it would all regrow at the same length. It’s more than five weeks since the chemo ended. Amazingly my eyelashes and eyebrows have already started to reappear. It won’t be long before my hair also comes back to life.

It was good to be doing something kinda normal again. The last time I visited Daniel Galvin, my hairdressers in London, it was a few days before my massive cancer operation. I had a cut and a bouncy blow dry. I wanted to go into hospital with it looking lovely. I’m sure the surgeons appreciated the effort.

My friend Angela has been cutting my hair ever since I moved back to Britain. When I was abroad I had plenty of bad hair days – it had been “accidentally” dyed orange and subjected to many dodgy styles. Angela helped to nurse my hair back to good health. It was finally in great condition and I really liked how it looked. Now I was getting her to chop it all off.

As Angela set to work, she kept checking that I wanted it all gone. I certainly did.

Here come the clippers

It’s taken me months to feel okay about losing my hair. Compared to what I’ve been through it shouldn’t have been a big deal but it was. It’s bad enough to have to fight a killer disease twice. I didn’t want to have another Sinéad O’Conner. However, I slowly got used to being a skinhead again.

Sitting in the busy salon with my tufty mullhican I wasn’t upset or even embarrassed. I was ready for my new look.

I’d thought I was going to get a baldy head, all smooth and shiny. I was worried that I was going to look awful. Instead Angela gave me a number three all over. I managed to avoid getting a close shave. I’’m really happy at how it turned out.

Hey cancer – look – I still have some hair!!!

Tah dah!

Before the drastic cut, I was scared to touch my hair because it would just fall out in my hands. Strands of the stuff got everywhere. It’s now very very short but it feels thick and strong.

With my real hair sorted it was time to introduce Candice and Raquel. This was their first trip to the hairdressers. I needed Angela to work her magic on my wigs and she couldn’t wait to get her hands on them.

The trouble with wearing a wig is that it can so easily look fake. Like a lump of unnaturally big hair that’s been plonked on your head.

Angela, me and Raquel

After both getting a trim, they looked much better and a whole lot less wig like. Even so, I won’t be wearing them all the time. They’re far too hot and itchy.

I’m so glad to have finally got rid of the fluffy mullhican. It was actually making me appear a lot sicker than I was. I had started to hate what I saw. This was something that cancer had done to me.

I’ve taken back control and now when I look in the mirror I see a new start.

Cancer makeover

Chemo number four was very different. This time I was sat in a hospital ward with a lively group of chatty women. All of us with various stages of hair loss.

My friend Tamsin joined me for some chemo coffee. It made me realise that maybe it’s not my confidence that’s been effected by all this treatment. It could be that I just spend so much time on my own.

With gossip, cake and fancy chocolates, I was soon feeling like myself.

The wig-man did keep his promise even though he was almost two hours late. I’d never normally wait that long for a man but this was no ordinary date. Besides I had a needle in my hand and a toxic cocktail on ice.

By the time he arrived we were ready for some fun.

I had the fittings in a side room that’s mostly used for private consultations. The kind you never want to have. If there’s something that a doctor can’t say to you on the ward then it’s likely to be horrific news. I was so glad to be in there for a happy occasion.

And it was happy.                               

I’ve finally come to terms with my falling out hair although I’m going to hold off getting it shaved off. Hopefully not until the chemo is over. I like still having hair while I’m so ill. Somehow it makes me feel not quite so bad.

It’s crazy that it’s been so difficult. When I last had cancer I wasn’t nearly so worried. Perhaps because it was another sign that I really did have cancer again.

I was determined to have long light brown hair, similar to how I used to look. I wanted to be able to hide behind my old hairstyle.

But as I was feeling much more like me and a whole lot braver, it didn’t quite work out like that. I may soon be bald but I’m also going to be blonde and bold.

My new look!

But not like this one below. Woah, I’m back in 1980s.

That’ll be a no then

Tamsin had difficulty taking the photos as she was laughing so much. But not at the next wig.

Oooh big hair

Wag-tastic, I had to have this one too!

It’s almost like my Barbarella wig, only a bit less of a bouffant. It’s something that could be straight out of the TV show, The Only Way is Essex with a touch of Kate.

This will be my going out wig.

And it won’t stop there; I’m going to get a whole wardrobe of wigs. When I’m bored of being blonde, I may go red, blue or black. Whatever takes my fancy. So much for fading into the background.

But before I could do any of that it was time for my chemo to start.

The treatment is getting tougher. After a couple of hours, the drugs made me so dizzy that I had to get into a hospital bed and sleep for the rest of the day.

It still feels like I’m a long way off from being well enough to wear the wigs for real. But at least I’m now on the home straight.